Happy Monday

One girl asleep, another one winding down with Daddy and a chance to sit down.  The place is still a disaster after a very busy weekend but I'm too drained to care.  We held Nicole's Baptism on Sunday and with that came lots of cooking and organizing and running around.  On top of that we had Nicole's exam under anaesthesia (EUA) to worry about. 
The EUA was on Thursday and little Nicole did very well.  I am lucky that she doesn't usually wake up hungry so she doesn't complain when I don't feed her for these procedures.  She had her last bottle at 3am and then sugar water with her meds at 5:30am.  The EUA was at 930am.   The procedure is to sign in 2 hours before then head up to get her changed into a hospital gown, weighed, checked, and give her eye drops.  The eye drops are the worst part of the whole thing.  She screamed and screamed and screamed....along with the little girl in the next room.  The first drops are numbing drops which are suppose to take the sting out of the next 2 dilating drops.  Don't think it works all that well.  And the drops go into both eyes because while they are there they make sure her left eye is all good.  (And it is.)
After all that fuss we are walked to the OR waiting room.  There our ophthalmologist came to speak to us and have us sign consent to take her in.  Then came the anaesthetist who had with him a medical student.  The poor girl was so green you could spot her a mile away.  The anaesthetist explained what he would be doing.  He would put a mask on Nicole, put an IV in and then put in a breathing tube for the procedure. After I made sure he would be the one putting a breathing tube into my child and not the med student they were off.  (Sorry, no practising on my little one.)  Then the OR nurse came in and it was time for Nicole to go.  Thankfully she was asleep.  Still sucked. 
The exam took over an hour.  Felt like a zillion more.  The doc finally came out and told us they took lots of measurements and photos.  The pressure in her PHPV eye was down to 19 but still not enough so they added a 4th eye drop to our entourage.  The long and short of it is that this will likely not correct itself so we need to decide whether we would like Nicole to have more surgery.  What a horrible decision to have to make.  It's definitely like being stuck between a rock and a hard spot.  She stays on meds they may not be healthy for her.  She has surgery she may have numerous complications resulting in more procedures and even possibly eye loss.  We are trying to become more informed on all the options so when we go back to the Clinic in 2 weeks we can have an educated conversation and be confident with our decision.
We have also been upped on patch time.  It's now gone from 2 hours to 4.  We have only been able to get up to about 3.5 hours before Nicole just loses it.  I still think that's pretty good.  We also have a new contact thanks to the change in eye shape from the glaucoma.  
And I think that's about it for now.  Just trying to get through it all....one day at a time....