Disappointment

So, as most of you know and for those of you who don't, our little Nicole was booked for her goniotomy surgery yesterday.  That's where they go in and try to open up blocked areas of the eye to help relieve some of the "backup" of fluid that causes glaucoma. 
So....we were booked for noon.   For any of you with babies you can only imagine having to withhold food for 6 hours.  Usually we've been booked for first thing in the morning which doesn't seem as painful.  Nevertheless, Nicole was a trooper.  Of course the OR was behind which didn't help matters.  We endured the whole horrible experience of putting our baby in hospital PJ's (although we've been through this enough that I brought booties from home for her this time), questionnaires, signing consents, handing her off to the OR nurse, and finally the dreaded wait in the surgical waiting room.  We were lucky enough to have a visit from a wonderful friend...thanks Nicole!  Then an hour and a half later out came Dr.T.  Nicole did great with the anaesthesia and was waking up.....but....it was a no go for the surgery.  Bubble burst.  We were expecting complications but not a total no go.  That never even crossed our minds.  Apparently, her cornea was too hazy for Dr. T. to have a safe view of what she needed to do.  They tried to scrape the cornea to clear it but it was unsuccessful.  We now need to go the route of putting tubes in her eye.  She explained the whole procedure, including the fact that there will be donor cornea keeping the tubes in place.  I think that's when I stopped listening cause I was in total overload.  We now wait to have the procedure organized since Dr. T. needs to have a retinal surgeon present in case of....so in a couple of weeks....back we go.

Now, we have the pleasure of caring for a 5 month old infant in horrible pain.  I have never heard her shriek this way.  We were told it was a painful procedure and to give Tylenol.  Yeah, that didn't do a thing.  By 8pm we were calling the resident on call.  He said he was in the OR with Nicole and was half expecting this call.  Well, if you were half expecting it why didn't you prepare us better???  I was ready to take her to ER for some morphine but he said the cornea heals in 24 hrs so we weren't likely to get a script for anything. In the meantime Tylenol/Advil and Gravol and it should be better by 24 hrs.  Fine.  That's what we are doing.  She seems to have settled a bit but definitely does not want to eat.  I put in a call to our family doctor to get some dosing for the Gravol.  And that's where we're at.  Poor thing looks like she's been beat up....but the sweetheart still smiles behind it all. Crazy how kids are such troopers.
Going in on Wednesday to have the "bandage contact" removed and see what's going on.
Will keep you all posted.
Thanks for all the love and support.  It is all so very needed!