 |
| Our new fish contact case |
The story of a child with PHPV, a mom with MS, and our lucky little family.
Monday, March 19, 2012
Check this out!
So, the contact drama has subsided. Must've been a bad day for my pumpkin. Thank Heavens!! Anyhow, I just wanted to share how excited I am about these super cute contact lens cases I found. I mean really, who else would get how important it is to have cute patches...and if possible....cute cases!! Lilia thinks they are pigs and asks every morning if we've got the pigs in Nicole yet. LOL. We also got blue elephants! Oh, and although still difficult to see the lens is somewhat more visible in the bottom. Ah, the little things that make me happy.
Sunday, March 18, 2012
Lovely
A friend of mine shared this article from our newspaper on Facebook and I though it was absolutely lovely. A wonderful reminder that we can all touch lives by living an "ordinary" life.
http://www.thestar.com/news/article/1146928--shelagh-was-here-an-ordinary-magical-life#article
http://www.thestar.com/news/article/1146928--shelagh-was-here-an-ordinary-magical-life#article
Tuesday, March 13, 2012
Hello!
Hello!
Life has sure caught up with us. Being back to work full time is proving to be quite the challenge. Although I do find a moment at the end of every day to read my favourite blogs and take a peek at Facebook keeping up my own blog is not working out too well is it!! At the end of the day the exhaustion sets in and all the things I wanted to share just take a backseat to my calling bed.
Nevertheless, I did want to stop in and let everyone know that Nicole is doing quite well lately. I guess that is relative though. She's still on drops twice a day and as of yesterday the tears and fighting has picked up again for any and all lens business.
After nearly 6 months of putting in Nicole's lens without having to swaddle her today I cracked. And I cried. And she cried. After almost six months I had to tie her down and pry her eye open through teary eyes....mine and hers. But damn it I got the stupid thing in.
Anyhow, I try not to dwell on it. I hope it's just another stage that will soon pass. I guess it's all just a reminder of how much easier things could be. Thoughts and feelings that no one can understand except those of us going through it. And believe it or not, through all of this, we actually received an email that preceded to explain to us that although we were going through difficult times so were others. And then it listed all the things other people were dealing with. Yuppers. Thanks for the love.
I guess it's partly our fault. My hubby and I stand strong together. We are each other's support. No one else in our life understands. Not one other person. Sure people empathise. But unless you've lived it you've got no clue. I suspect that because we stand strong people don't see the pain.
Maybe a day in our shoes would help.
There are no morning cuddles. Nope.
There are drops.
There are physical restraints. Tying your baby down to do something so very not natural,
There are lenses. Lenses you pray to get in the first shot.
Lenses you pray you don't lose through out the day.
There are long days of work from which you come home exhausted and find the lens has been lost and with it any and all money made that day and more.
And now, exhausted you crawl painstakingly throughout the house looking for the impossible.
There is laying an infant down and taking their sight away. Every. Single. Day.
There is planning entire days around patch time. How much time left has become normal jargon while others wonder what the heck you are talking about.
There is crying. There is fussing. There is a child begging you to unpatch them. But you can't.
There are endless doctor's appointments.
There is starving your child so someone can force sedatives down their throat for these appointments.
There are surgeries and retinal detachments and glaucoma and corneal scrappings.
There is nothing good.
Nevertheless, we trudge on. Each day passes and we fall in love with our girls more and more and we thank God for all the good that we have. We have learned that life is too short. So we brush aside the ignorant comments and move forward. And smile. Cause truly...life is good.
Life has sure caught up with us. Being back to work full time is proving to be quite the challenge. Although I do find a moment at the end of every day to read my favourite blogs and take a peek at Facebook keeping up my own blog is not working out too well is it!! At the end of the day the exhaustion sets in and all the things I wanted to share just take a backseat to my calling bed.
Nevertheless, I did want to stop in and let everyone know that Nicole is doing quite well lately. I guess that is relative though. She's still on drops twice a day and as of yesterday the tears and fighting has picked up again for any and all lens business.
After nearly 6 months of putting in Nicole's lens without having to swaddle her today I cracked. And I cried. And she cried. After almost six months I had to tie her down and pry her eye open through teary eyes....mine and hers. But damn it I got the stupid thing in.
Anyhow, I try not to dwell on it. I hope it's just another stage that will soon pass. I guess it's all just a reminder of how much easier things could be. Thoughts and feelings that no one can understand except those of us going through it. And believe it or not, through all of this, we actually received an email that preceded to explain to us that although we were going through difficult times so were others. And then it listed all the things other people were dealing with. Yuppers. Thanks for the love.
I guess it's partly our fault. My hubby and I stand strong together. We are each other's support. No one else in our life understands. Not one other person. Sure people empathise. But unless you've lived it you've got no clue. I suspect that because we stand strong people don't see the pain.
Maybe a day in our shoes would help.
There are no morning cuddles. Nope.
There are drops.
There are physical restraints. Tying your baby down to do something so very not natural,
There are lenses. Lenses you pray to get in the first shot.
Lenses you pray you don't lose through out the day.
There are long days of work from which you come home exhausted and find the lens has been lost and with it any and all money made that day and more.
And now, exhausted you crawl painstakingly throughout the house looking for the impossible.
There is laying an infant down and taking their sight away. Every. Single. Day.
There is planning entire days around patch time. How much time left has become normal jargon while others wonder what the heck you are talking about.
There is crying. There is fussing. There is a child begging you to unpatch them. But you can't.
There are endless doctor's appointments.
There is starving your child so someone can force sedatives down their throat for these appointments.
There are surgeries and retinal detachments and glaucoma and corneal scrappings.
There is nothing good.
Nevertheless, we trudge on. Each day passes and we fall in love with our girls more and more and we thank God for all the good that we have. We have learned that life is too short. So we brush aside the ignorant comments and move forward. And smile. Cause truly...life is good.
Subscribe to:
Posts (Atom)